Clik here to view.
Do Doctors Need to Love Patients?
The most admired leaders of our country have been the ones who trusted us, valued us, and actually loved us. President Reagan called America a “shining city upon a hill,” a biblical reference to the...
View ArticleClik here to view.
News Flare! 1st Rituxan Infusion! WebMD Award! and More!
First Rituxan infusion Monday, I spent 8 hours with an IV for my first Rituxan infusion. It took a longer time for various reasons, but it seems I did fine. So far my only noticeable side effect has...
View ArticleClik here to view.
Living with (RA) Rheum Disease Is Already Multitasking
Where have you been girl? As this post goes up, I’m in a chair with an IV getting my second Rituxan IV infusion. It’s hard to write about myself, but I really need to keep you informed about what’s...
View ArticleClik here to view.
The Path of Mercy in Medicine: A Tale of Two Doctors
Physicians enjoy a unique position in our society with unique opportunities to make a difference in others’ lives. With that powerful role, they can choose between a path of mercy and a path of...
View ArticleClik here to view.
Rheumatoid Patient Foundation Needs Your Help
I was glad when it started raining today – it’s proper to rain when you cry. The Digital Patients’ Bill of Rights Things are happening fast. The E-Patient Connections conference was fantastic. The...
View ArticleClik here to view.
Kelly Young Wins WebMD Health Hero Award
WebMD magazine chooses Kelly as 1 of 4 “Champions of Care”! Look what I found on my dresser when we got home from Chicago last night! The new WebMD magazine with yours truly in it! You can click on the...
View ArticleClik here to view.
Mondini Syndrome Is Just Deafness Like RA Is Just Arthritis. Not.
I was home for 3 hours today in between doctor appointments for my Tiger and I spent that time reading up on his diagnoses. As I drove him to 3 doctors in 2 days, thoughts swirled around and I decided...
View ArticleClik here to view.
Energizing E-patient Engagement – Collaborations that Count
This blog is not about me because it’s always been much more than a way to share my own journey. This blog tells OUR story – the true story of Rheumatoid disease, the people who live with it, the fight...
View ArticleClik here to view.
The Powerful Health Care Role No One Really Wants: Being a Patient
The valuable knowledge of patients with diseases like RA Today, Katie Beth and I flew home from San Francisco where I spoke three times this week: There was a presentation at about the value of patient...
View ArticleClik here to view.
Sample Size: 1 of Every 100 RA Patients in U.S. Are Members of Our Facebook Page
Transparent objectives of a patient community As the author of this blog, I’m completely transparent about why I’m here: Stunned at learning what so many RA patients endure, I committed to doing...
View ArticleClik here to view.
We’re Warriors So Fighting On Is Just What We Do
Blue Button meeting at HHS (ONC)The iPad looking back from the front of the crowded meeting room. #HealthIT4u at ONC@Farzad & @Lygeia (in Walking Gallery jacket) at Blue Button meeting. Kelly and...
View ArticleClik here to view.
Red Feet, Frankenstorm, Unexpected Sympathy, and Travel to PCORI Workshop...
Tiger and I left home for the PCORI conference today in D.C. in spite of the fact that many in the D.C. are evacuating from the area! Schools were closed on the Space Coast due to Hurricane Sandy,...
View Article